The Hungry Owl
& Fit Flamingo
The story behind
The Hungry Owl & Fit Flamingo
Thank you for taking your time to know more about me. I am a mom of 2 in my mid 30s. I worked in the healthcare field until 2021 when my health rapidly declined. I have completed 3 half marathons and would love to complete a full marathon. I have a passion for cooking and discovering new ways to cook traditional foods adding unexpected spices & ingredients. My favorite cuisine is Indian food. I am not so good at baking although I do try. But I do think I make the best pineapple cornbread cake. Besides cooking I enjoy gardening, mostly cultivating hydrangeas. This year I plan on growing gardenias from my neighbor’s plant. I am learning how to sew and improve my drawing skills.
I have dealt with health challenges for the past 13 years. These challenges have become more prominent in the past 6 years and finally intensive in the past 3 years. My journey to diagnosis has been challenging, heartbreaking and unpleasant at times, but I do not think that’s unique to me. In fact, I read that it takes an average of 7 years to get diagnosed with many autoimmune condition.
Right now my working diagnosis is Mast Cell Activation Syndrome (MCAS), Hypermobile Ehlers Danlos Syndrome (hEDS), Cold Induced Urticaria, Premenstrual Dysphoric Disorder (PMDD), Interstitial Cystitis (IC), Fibromyalgia (FMS), Dysautonomia, Pain Crisis, Pudendal Neuralgia, Neuropathy, Adenomyosis and history of traumatic head injury with blindness to my right eye. My mast cell disease is secondary to all my other conditions.
My goal is to share my journey with MCAS & how it is affected by my other conditions. My hope is that perhaps someone may find this information useful. I do a lot of research to gain insight into my conditions. Some of these helpful insights have been from others like myself. My goal is not to one up another blogger but to join in the chorus of awareness about rare diseases & chronic illness. With that said, the experiences and information I share is unique to me & I can not stress enough that each person should seek professional advice from a credible physician before embarking on any changes to their medical condition. Each individual with mast cell disease is different hence the difficulty in obtaining a diagnosis. This also due to skepticism and lack of understanding of the disease by some healthcare providers. I will also share my experience with compassionate, caring and knowledgeable doctors.
Also reading others experiences has made feel that I am not so unique with some of the symptoms I have. Chronic debilitating illness can be extremely isolating but finding others who share the same diagnosis can be helpful in managing the loneliness. I will take you on a journey of the road to diagnosis, treatment and finding knowledgeable physicians who have been helpful to me on this difficulty journey.
Aside from this, I have also been able to cope because I know one day, no resident will says I am sick. Sickness, pain and suffering will be done away with. Even if there is no cure now, I know that I will be able to endure because of my hope of a beautiful new earth when there will be no more pollution, or foods that make us ill. There will be no barrier to receiving the care we need regardless of our race, sex or region of the world we live in. I am very grateful for the care I receive from my dear husband and support from friends and family. While some of my experiences I will share have not been ideal, I consider myself to be extremely fortunate to have what I have today. I do have a wonderful life because I am able to help others have the same hope I have for the future. I have found happiness in giving to others because it distracts me from feeling pity for myself. Yes there are days of tears, pain & agony, but all I have to do is wait just a little while longer and it will be no more.