Chronic Illness: How I get the most out of my day.

Planner? Well I try to have one. Most of the time I do not. But I do keep a mental note of what I need to do for the day & for my week. For difficulty brain foggy days, I will create a to do list. There are non negotiable tasks I have to do for the day. I also use my phone’s calendar quite a bit for : medications, when to start dinner, check homework, start of period and ovulation.

Sometimes the hardest task is not physical but mental. I immediately get drained when I have to deal with the insurance company, appointment logistics and medication orders. I need an extra boost that day. I definitely save those for after my period because leading up to my period my head is clutter and full of fog. I try to take care of administrative tasks in the morning between 10am & 12pm. I find I am most clearest during those times. After 1pm, I start to go in to a state of mental hibernation. I can’t think. So mindless tasks such as shredding sensitive documents, loading the laundry or doing the dishes is more feasible.

I find that completing tasks in clusters works better for me. For example, if I have to empty the trash can in my master suite bathroom, brush my teeth, grab a clean towel, take my medications, I do it in one trip. I create a mental road map of what I can get done from my bedroom to my kitchen. I think most people with chronic illness subconsciously do the same thing. It takes more energy to get going than to keep going.

When I get our of bed in the morning, I make my bed. I know that’s where I am going to end my day, so I want it to be inviting. A messy bed makes it hard to sleep. My hubby calls me the princess & the pea because a small crinkle in the sheets will keep me up all night. Bathing or showering is always done at night because it relaxes me and helps me to ease into sleep. Most people with EDS or any autoimmune issues have a terrible time sleeping.

Not much of a plan but more of a thought process of how I get through my day. I work better with thought processes than a hard core schedule. I like the adaptability of a thought process because my body has a mind of it’s own. Annnnnnnnnd…. throw in kids, well that’s another story for another day.

Some days, rolling to the other side of the bed is as far as I can get. And that’s where I stay.

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